Saturday, October 26, 2013

ROC Follow-up

On Friday, October 18th, my Mother-In-Law, Joan, and niece, Piper, came to visit us from England. It's always nice having them here. My Father-In-Law couldn't get the time off work and we missed him but it was nice Mum could come with Piper. I'm sure it goes without saying but Georgia was beyond thrilled to have them here. Georgia really has the biggest heart and loves them all so much. Christian was happy they were here too but he's a teenager and doesn't get excited over anything except maybe video games. Typical teenage boys!

Their visit coincided with a few doctor's appointments for me and Baby Brother so I invited Mum along. It's difficult to answer her and my Father-in-Law's questions when I don't really know the answer to them either so it was nice her visit would allow her to come to the appointments with me.

Monday, October 21st was a follow-up visit with the ROC. I knew this visit shouldn't take as long as the previous one because now we know what we're dealing with and the specialists have been brought in.

We went in for the sonogram and the tech doing the sonogram is the same one that did the first one. The "normal" one. (this is now the 3rd sonogram with ROC) She even made a couple of comments about the fact she didn't see any problems the first time and how she was going back over her pictures and the scan itself to see what she missed and why she could have gotten it wrong. I just figured baby was too little but apparently she was beating herself up over it. I just remember Jason and I rationalizing how the first scan seemed ok and then we had a crazy woman do the second scan (I mean, she had me on my side and everything) so obviously crazy lady was wrong and the first one was correct. So, I kind of was a little miffed at her but it isn't really her fault is it?

Anyway, the scan didn't take too long but then we had to wait for the doctor to come in. That took a little while. Once he came in he immediately asked if Baby Brother had a name. I told him not yet so he said "Ok, well his name is Carlos" and then proceeded to talk to me about "Carlos". He was surprised to see any left ventricle at all because usually in HLHS babies the left is so severally underdeveloped they are very tiny in comparison to the right side. In his opinion this was good news. He asked me what I knew about HLHS and I said very little but then went on to tell him what we know and he smiled and said it looks like we know much more than we think we do and he thinks "Carlos" is in pretty good hands. He was very positive and that made me feel good. Finally I felt good. I told him even though the news was devastating we were hopeful with the little bits of good news we've gotten. He looked at me and said "No, having him at Orange Park and then taking him home only to go into his room to wake him and find him not breathing, THAT is devastating! Now we know and we can take care of him!" Wow! Talk about putting things in perspective. He said Baby Brother's heart is a little large and Mum asked if it could be because the right side is pumping so hard to take over for the left side and he said possibly. If it isn't exactly obvious by the name he gave Baby Brother the doctor is of Latin decent and speaks with a very heavy accent. My Mother-in-Law is English and also speaks with an accent so I was just wondering if they actually understood each other most of the time ;) The doctor said "Carlos" was growing wonderfully. He is in the 58% for weight and height. And, most importantly, at this time he only can see HLHS. No other issues with Baby Brother. What a relief!


1 comments:

Unknown said...

Which doc was that? I go to the ROC as well. I love Dr Gaudier.

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I am a regular everyday wife to Jason and mom to Christian and Georgia on a roller coaster ride. We are overjoyed to be welcoming a 3rd baby into our life. We feel blessed to be given such a special spirit in this 3rd baby. This is our journey to mend our baby's broken heart.

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