Hearing this diagnosis was the first time I had ever heard of such a thing. It is a Congenital Heart Defect (CHD). There is no immediate family history in my family or Jason's of Hypoplastic Left Heart Syndrome but there doesn't need to be. There are so many unexplained diagnosis(es)? Diagnosi? What is the plural of diagnosis???

Here is an interesting CHD fact: 1 in 100 children will be born with a CHD.

HLHS? 1 in 5000 children will be born with HLHS. Two-thirds will be boys.

Scarier even? There are SOOOOOO MANY CHD's.

Interesting Points: My cousin's son (on my dad's side) was born with HLHS and is today a thriving little boy. This gives me hope! I am now "friends" with another "heart mom" (through facebook and email, that's why the quotes around friends...haha) whose son had HLHS and some other issues and he is now a thriving little boy. This gives me even more hope!

I never envisioned myself as a "heart mom" but this is our new normal. I'm a heart mom! Jason is a heart dad! I'm not sure there is a better man suited for the job.

There is still the stages of grief I am going through. I have accepted the diagnosis but I'm grieving over what could have been. It's very selfish of me and I'm trying so hard to let go of this. I've been reassured this is extremely normal.

I found a great and informative animation on youtube. It's a little long but well worth the 7 minutes if you are interested in HLHS. It also goes through the procedures Baby Brother will endure.




We continue to ask for prayers for our family. We need Baby Brother to be big and strong! All of him! Especially his little heart.